TODAY?
             Thomas L. Clouse, M.D.

                                      
                          WALKING WITH ATAXIA   

TOMORROW!
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The nitty gritty (text)
 
   You are your enemy.
     Believe you can.
     Let's begin.
     To move, to walk.
     Stepping out.
     Not shuffling.
     It's not just walking.
     Remember when.
     The dance.

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 Links to other sites

     

Tampa Bay Ataxia Support Group
May 10, 2008
Clearwater, Florida

www.flataxia1.org/index.html
Northeast Florida Support Group
August 9, 2008
Jacksonville, Florida
 
Tampa Bay Ataxia Support Group
November 8, 2008
Clearwater, Florida

contact chrisfrohna@yahoo.com for more info

www.flataxia1.org/index.html
National Ataxia Foundation
2008 Annual Meeting 
Las Vegas, Nevada
March 28-30, 2008
Tampa Bay Ataxia Support Group
March 8, 2008
Clearwater, Florida
Crystal Frohna
President, TBASG
813-453-1084
HSP Foundation Team Walk
October 13, 2007
Thomasville, Georgia

 

Florida TeamWalk Retreat
Aug. 26-27, 2007
Kissimmee, Florida
 
Orlando Ataxia Support Group
May 12, 2007
Orlando, Florida 
National Ataxia Foundation
2007 Annual Meeting
Memphis, TN
Mar. 22-25, 2007

The 2008 NAF meetings in Las Vegas went well and many of us were very busy throughout that long weekend.
I gave four sessions on Friday which were all well attended and - here's the good part - we helped many people learn to walk better and their smiles lit up the room.  As is my routine, I ask for volunteers to come to the front of the room where I lead them through some basic techniques.  These are folks of all ages, with varying degrees of problems with walking secondary to their disorder, just like you.  As they walk towards the front of the room they bring with them some enthusiasm and a willingness to try something new.  They want to find something that helps them today. 
They want something to help them be more normal.

And that my friends is exactly what they received and took with them.  They demonstrated to themselves, and the others in the room, how applying some simple techniques to their daily activities can make a dramatic difference.  Within a short time most of these people were swaying much less as they stood facing the audience.  They began walking with a narrower gait and they were much more stable with all of their movements.  And what type of things did I have them doing?  Just the everyday task of walking more normally with some the same information I share on this website and my CDs!

I demonstrate and explain, then they try it themselves.
We work through the awkwardness, then they apply it.  It's almost that simple, but comes with a lot of work to master it.

And you can have the same benefit if you want it bad enough.
Do you have the drive to help yourself regain some of your lost movement skills.

I know I can help you.  How much of a help I can be to you is of course dependent on a few variables.  For instance, how disabled are you?  The more disabled you are, the more you are depending on walkers or wheel chairs, the more sedentary you are, and the weaker you are, all means that you have more to work on to get what you want.  For those of you who are still ambulatory don't put it off any longer.

The longer you wait to start the process of recovery,
the weaker you get, and that means you will become more clumsy,
 and this all means that you will become more and more restricted in everything you try to do.
It doesn't have to necessarily be that way.  

 Start your journey now!  You don't have to just accept your disorder.  You can do something for yourself today.  You can move and function better and I can help you prove it to yourself.  If you want some proof ask some of the people I've helped for a testimonial.  Contact the National Ataxia Foundation for a reference.  Read some of their letters I've posted on this site.  But most of all, try some of what I'm giving you for yourself - give it an honest try.

I've made some CDs with a great deal of information for those of you who would like to hear this material and better apply it.  I know it's not perfect, a video would be better, but the cost and time of doing that is beyond me at this time.  However, that is something I hope to do soon because you need to see this stuff to better understand it.  It would be wonderful to come to the various support groups around the country, but the cost for that gets in your and my way.  Therefore, it is my hope that the sale of the CDs will provide some of the revenue to allow me to travel to more support groups and thus, help more people walk better and improve their quality of life.  I would appreciate your support while you are doing something for yourself in return.

Remember, I have ataxia from SCA-14 and understand your situation.  I live it.  And I also did something about it to reverse some of the problems we encounter.  Don't continue to be controlled by the saying, "You'll just have to live with it!"  Do something for yourself and live in spite of it!  I can help you.